In additional to the information below, Imagine
Enterprises has a new website, www.selfdetermined.org,
devoted only to Self-Determination.
Self-Advocacy and Self-Determination
Self-advocacy is speaking for oneself. Self-Determination
is a journey of developing skills and abilities to be in control
over one’s own circumstances. Self-determined people are their
own advocates.
Self-Advocacy
Why is self-advocacy important? Because people are more likely
to get things they want in their lives and “push” the
system if they:
- Know what is important to them.
- Know what is possible.
- Have substantial control over resources available.
- Feel they are respected and trusted.
- Feel they have a partnership with those who are helping to
plan and support.
As young adults become strong self-advocates, they learn to maintain
their principles, dignity and faith without compromise. Their values
are strong and they have the ability to act on their own behalf.
Self-Determination
Why is self-determination important? Because freedom is the basis
of our democracy. It is not just for some of the people. It is for
everyone. Most people trying to develop personal power and/or self-determination
go through the same natural process-whether or not they have a disability.
Self-determination is:
- The ability to be in control of your present life and the design
of your future.
- The ability to make choices, set personal goals and take initiative
in achieving them.
- A life-long process and combining of skills, attitude and environment.
The Five Principles
of Self-Determination:
Freedom:
The right to make basic choices about your life.
Authority: To control the money
that is spent on your behalf and the supports you receive.
Support: To develop your dream-to
reach your goals.
Responsibility: To give back to
your community and be accountable.
Confirmation: Affirming the central
role you have in leadership and change.
History of Self-Advocacy
The seeds of the self-advocacy movement can be traced back as far
as 1968, when a Swedish parents’ organization held a meeting
for people with developmental disabilities. The people at the meeting
spoke out about the changes they wanted in the programs that were
run by their parents. During the next five years similar meetings
took place in England and in Canada. A small group of people from
Oregon went to one of those conferences, but they felt that professionals
dominated it. They started planning to have a conference in Oregon
that would be run by people with disabilities.
The People First movement began in Oregon on January 8, 1974,
at a conference-planning meeting. At the meeting one man talked
about being labeled “ mentally retarded” and said, “I
want to be known as a person first!” “ People First”
was chosen as the name for the convention, which was held in October
1974.
Self-advocacy groups sprang up all over the United Sates, Canada,
England, Australia, New Zealand, and Sweden, during the next 10
years. In 1984 the first International Self-Advocacy Leadership
Conference was held in Tacoma Washington.
In the US, the self-advocacy movement continues to grow. In many
states, local groups have come together and formed statewide organizations
that have boards of directors (most or all of whom have disabilities)
and employees (who may or may not have disabilities) that carry
out the wishes of the self-advocates who are the members.
TOOLS FOR PROMOTING SELF-ADVOCACY
AND SELF-DETERMINATION
Person-Centered Planning
Person-centered planning is a tool that helps people describe who
they are, what they want and what they need. For a person with a
disability, a person-centered plan answers the questions: How do
you want to live your life? What supports do you need to realize
that life?
Person-centered planning presumes that:
- First and foremost, everyone is respected for their values
and contributions.
- Everyone has the right to plan a life that is personally meaningful
and satisfying.
- Every person has talents and strengths.
- A person with a disability should not only have an equal voice
at the planning table but should take a leadership roles.
- A person with a disability should be supported and empowered,
not directed and controlled.
Person-centered planning is different because
it:
- Starts with an individual’s preferences, capacities,
needs and dreams.
- Takes direction from the individual and their family.
- Involves members of the community-not disability experts.
- Asks what is important before asking where/if it can happen.
- Creates a positive, possible future.
A person-centered plan should reflect what is important to the
person, detail what actually happens in the support he or she gets,
clearly describe the roles and responsibilities of people who will
be involved in supporting and be easy to read and user-friendly.
Person-centered planning is conversation and
information gathering:
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