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Last updated:
October 29, 2006


Self Determination & Self Advocacy

In additional to the information below, Imagine Enterprises has a new website, www.selfdetermined.org, devoted only to Self-Determination.

Self-Advocacy and Self-Determination

Self-advocacy is speaking for oneself. Staff member Debbie Locke working with a clientSelf-Determination is a journey of developing skills and abilities to be in control over one’s own circumstances. Self-determined people are their own advocates.

Self-Advocacy

Why is self-advocacy important? Because people are more likely to get things they want in their lives and “push” the system if they:

  • Know what is important to them.
  • Know what is possible.
  • Have substantial control over resources available.
  • Feel they are respected and trusted.
  • Feel they have a partnership with those who are helping to plan and support.

As young adults become strong self-advocates, they learn to maintain their principles, dignity and faith without compromise. Their values are strong and they have the ability to act on their own behalf.

Self-Determination

Why is self-determination important? Because freedom is the basis of our democracy. It is not just for some of the people. It is for everyone. Most people trying to develop personal power and/or self-determination go through the same natural process-whether or not they have a disability. Self-determination is:

  • The ability to be in control of your present life and the design of your future.
  • The ability to make choices, set personal goals and take initiative in achieving them.
  • A life-long process and combining of skills, attitude and environment.

The Five Principles of Self-Determination:


Freedom: The right to make basic choices about your life.

Authority: To control the money that is spent on your behalf and the supports you receive.

Support: To develop your dream-to reach your goals.

Responsibility: To give back to your community and be accountable.

Confirmation: Affirming the central role you have in leadership and change.


History of Self-Advocacy

The seeds of the self-advocacy movement can be traced back as far as 1968, when a Swedish parents’ organization held a meeting for people with developmental disabilities. The people at the meeting spoke out about the changes they wanted in the programs that were run by their parents. During the next five years similar meetings took place in England and in Canada. A small group of people from Oregon went to one of those conferences, but they felt that professionals dominated it. They started planning to have a conference in Oregon that would be run by people with disabilities.

The People First movement began in Oregon on January 8, 1974, at a conference-planning meeting. At the meeting one man talked about being labeled “ mentally retarded” and said, “I want to be known as a person first!” “ People First” was chosen as the name for the convention, which was held in October 1974.

Self-advocacy groups sprang up all over the United Sates, Canada, England, Australia, New Zealand, and Sweden, during the next 10 years. In 1984 the first International Self-Advocacy Leadership Conference was held in Tacoma Washington.

In the US, the self-advocacy movement continues to grow. In many states, local groups have come together and formed statewide organizations that have boards of directors (most or all of whom have disabilities) and employees (who may or may not have disabilities) that carry out the wishes of the self-advocates who are the members.


TOOLS FOR PROMOTING SELF-ADVOCACY AND SELF-DETERMINATION

Person-Centered Planning

Person-centered planning is a tool that helps people describe who they are, what they want and what they need. For a person with a disability, a person-centered plan answers the questions: How do you want to live your life? What supports do you need to realize that life?

Person-centered planning presumes that:

  • First and foremost, everyone is respected for their values and contributions.
  • Everyone has the right to plan a life that is personally meaningful and satisfying.
  • Every person has talents and strengths.
  • A person with a disability should not only have an equal voice at the planning table but should take a leadership roles.
  • A person with a disability should be supported and empowered, not directed and controlled.

Person-centered planning is different because it:

  • Starts with an individual’s preferences, capacities, needs and dreams.
  • Takes direction from the individual and their family.
  • Involves members of the community-not disability experts.
  • Asks what is important before asking where/if it can happen.
  • Creates a positive, possible future.

A person-centered plan should reflect what is important to the person, detail what actually happens in the support he or she gets, clearly describe the roles and responsibilities of people who will be involved in supporting and be easy to read and user-friendly.

Person-centered planning is conversation and information gathering:

  • Spending time and talking with a person with a disability.
  • Talking to his/her family, friends and others who know him/her.
  • Learning what is important to him/her.
  • Developing a true and shared appreciation for his/her strengths and struggles.
  • Establishing how things are now.
  • Discussing values, options and feelings.
  • Discussing what needs to change-and what doesn’t.
  • Developing one (or more) action plans.

    For more information:


    Self-Determination for Texas
    Kim Tope
    Project Coordinator
    Imagine Enterprises
    (713) 253-9792
    contactkimt@yahoo.com



 

 

 

Logo for Self Determination for Texas
Check out our
sister website,
Self Determination for Texas

Guiding Principles: